Support Groups

We are the Alabama Support Group for the Turner Syndrome Society. Our focus is to provide basic support and resources to all those affected by Turner Syndrome. As a group, we want to raise awareness of Turner syndrome and fundraise for the Turner Syndrome Society. All are welcome! We meet twice a year at various locations throughout the state (event locations vary based on the type of event). We would love for you to join us. Please let us know how we can serve you!

We are the Arizona Support Group for the Turner Syndrome Society. Our focus is to provide basic support and resources to all those affected by Turner Syndrome. As a group, we want to raise awareness of Turner syndrome and fundraise for the Turner Syndrome Society. All are welcome! We meet several times throughout the year at various locations throughout the state (event locations vary based on the type of event). We would love for you to join us. Please let us know how we can serve you!

We are the Central and Northern California Turner Syndrome Support Group, and are an affiliated resource group of the Turner Syndrome Society of the United States. Our focus is to provide basic support to all of the girls, women, and their families who have been touched by Turner Syndrome. We are widely known for our TS Patient Family Education Days, which are held at various major children’s hospitals through Central and Northern California. We usually have approximately 60 to 70 girls, women, and their families in attendance. We also meet at various restaurants throughout the SF Bay Area and Sacramento. We have also held annual TS Awareness Walks for the past three years at our State Capitol Building in Sacramento. Please contact our group leader to let us know how we can serve you.

Welcome to the Delaware Valley Turner Syndrome Support Group. Our desire is to provide support and resources to families and friends in the Delaware, Pennsylvania, Maryland area who are touched by TS. We enjoy getting together for activities or sharing a meal about 4 times a year. We plan a fundraiser every year or so to raise awareness in the area as well as funds for further research. Please feel free to come be a part of us as well as invite others to join us.

The Northwest Florida Panhandle Support Group creates awareness and offers support and information to all those touched by TS.

Welcome to the Georgia Support Group. Our goal is to reach and support all individuals and their families in the local community. We hold both virtual and in person events throughout the year that establish lifelong friendships and we hope you will be a part of this amazing group.

The Illinois Support Group creates awareness and offers support and information to all those touched by TS.

The Kentucky Turner Syndrome Support Group is an affiliated resource group of the Turner Syndrome Society of the United States. Our goal is to provide support, education, and resources to girls, women, their families, and other individuals affected by Turner Syndrome. We meet every 3-4 months to discuss issues related to Turner syndrome, catch up, and enjoy delicious snacks. We’d love to have you join us!

We are the Minnesota Support Group of the Turner syndrome Society.  Our mission is to reach out and support all girls and women in MN affected by Turner syndrome even though we are based in the Twin Cities area.  We have educational and social gatherings throughout the year.  Most often we meet at local libraries. We try to gear our meetings and events to meet the needs of both families with younger girls with T.S. and adult women with Turner Syndrome.( We've been around since 1983)  We often have funds available to assist members in attending national TSSUS conferences. We would love for you to join us! 

Welcome to the Nation’s Capital TSSUS Support Group. Our desire is to provide support and resources to families and friends in the DC, Maryland and Virginia area who are touched by TS. We enjoy getting together for activities and social time a few times a year. Please feel free to be a part of us!

This is the Turner Syndrome Society Support Group of Philadelphia and Southern New Jersey meets several times a year locally to offer support, network, enjoy social and artistic events, and fund raise for all affected by Turner Syndrome. Examples include Brunch at Fado in Philadelphia, Met Live in HD in Somerdale, NJ, and Uno Dough Raiser Days in Deptford NJ.

I am Bex Rosales, currently serving as the coordinator for the New Mexico Turner Syndrome Resource Group. My journey has been that of a parent, guiding my child with Turner Syndrome into adulthood. This experience has driven me to establish a haven right here in New Mexico—a resource group designed to interlink parents and adults navigating the realm of Turner Syndrome. Through attending conferences and immersing myself in understanding Turner Syndrome since my daughter's diagnosis, a vital lesson has been learned: the significance of companionship and camaraderie. This realization has prompted our initiative to foster connections and provide a haven for like-minded souls. We are eagerly anticipating forging new friendships and curating events that facilitate networking opportunities for families within our local Turner Syndrome community. Our aim is not only to cultivate enduring relationships but also to infuse an element of joy into this journey.

We are the Oklahoma Turner Syndrome Support group. Our mission is to provide support and education to those in our community that want to learn about TS or are directly affected by TS.

This Support Group group is hosted by the OUHSC Turner Syndrome Clinic (TSC) at the OU Children’s Endocrinology Clinic in Oklahoma City.

We are the Northeast Oklahoma Turner Syndrome Support group. Our mission is to provide support and education to those in our community that want to learn about TS or are directly affected by TS. We meet every 3 months at the Brookside Library, in Tulsa Oklahoma. All are welcome! We have our annual Chasing Butterflies Walk every October at Whiteside park to raise awareness of Turner syndrome and also raise funds for the Turner Syndrome Society. We also have a booth every February at the Tulsa Women's Living Expo to spread awareness.

We are a group of ladies around the age of 60 and above and we meet once a month online and have had gatherings in person in the past. We'd love to hear from you and have your join our fun group.

Oregon Support group offers support to anyone who has been affected by Turner syndrome. We have meetings every other month, that are both educational and social. There are also opportunities to just get together when someone needs talk one-on-one. It is our desire to get the word out to our local community about Turner syndrome. One of the activities that we participate in regularly is the Butterfly Clinic at the children's hospital in Portland, Oregon. We would love for you to be our guest at the next one!

We are the Turner Syndrome Local Support Group of PA! Our focus is to help educate, support, and network within the state of Pennsylvania about the medical condition of Turner Syndrome. We welcome everyone! We meet in various locations in the Harrisburg/Central PA area as well as on Bloomsburg University's campus throughout the year. Our biggest event is the Butterfly Walk, and that is always an exciting time! Please join us at our events!

The Central Texas Support Group creates awareness and offers support and information to all those touched by TS.

We are the Dallas Team Support Group in the Dallas, TX and surrounding areas for the Turner Syndrome Society. Our goal is to reach out to TS families of all ages and backgrounds. We meet approximately once every quarter for fun social gatherings and picnics. We always have so much fun! We do our best to work with each other as a team to provide informational resources and fun activities. Everyone is welcome!

We are the Nation's Capital Support Group of the Turner Syndrome Society. It is our mission to assist women and girls with TS, as well as their parents/guardians. Our group serves Northern Virginia, Maryland, and the District of Columbia. We meet 3-4 times per year, hosting educational meetings and social events, such as our Annual Potluck Picnic. In 2015, in collaboration with the Central VA Resource Group, we hosted our 1st Annual TS Chasing Butterflies Walk in Fredricksburg, Virginia.

The Washington Support Group creates awareness and offers support and information to all those touched by TS.